The Adapted Life
Welcome to The Adapted Life Podcast, a dedicated space for those who have faced profound challenges, particularly those who have navigated the journey of having a child born with severe disabilities. This podcast serves as a sanctuary for connection, offering support and strategies for building resilience when life unfolds differently than we envisioned.
In this series, I share my personal journey with my disabled son, detailing the ups and downs we experienced together. Our story is one of love, hardship, and ultimately, adaptation. But now, my focus has shifted to the complex and often lonely path of adapting to life after the loss of my son.
Grief is a powerful, consuming force that changes everything. It can feel isolating and overwhelming, reshaping how we perceive the world around us. Through this podcast, I hope to explore what it means to grieve, to honor the memory of my son, and to find ways to move forward while carrying his spirit with me.
We'll discuss practical approaches to adapting to loss, including how to find joy in small moments, the importance of community support, and strategies for navigating everyday life when the ground beneath you has shifted. This journey is deeply personal, yet universal in its themes of love, loss, and resilience.
Join me as we create a conversation around grief and adaptation, turning our experiences into pathways for healing and connection. Every story shared strengthens our community and reminds us that while loss is an inevitable part of life, we have the capacity to adapt and find new meanings, even amidst heartache.
The Adapted Life
Inside his brain. What the MRI reveals and coping with it.
In this episode, I wanted to talk about my son's recent MRI, and what it really means to the entire big picture. And I guess, what it doesn't.
Thank you for being here, at the adapted life podcast. As with with my life, I am letting my intuitive thoughts and heart centered focus guide me as I unroll what "adapting" means to me. My hope is that someone out there will resonate with what it is like to be spending your life, keeping another precious human alive and cared for. In my case, it is my 25 year old son, who has a rare brain deformity.
"It was a virus, that started this whole ordeal. What the new neurology guy calls “the original injury”. A virus called Cytomegalovirus. Or CMV. If you have not heard of CMV, you should have. Especially if you have been pregnant at any point, or know someone who is. The CMV virus is a common virus, spread by direct contact with infectious body fluids, such as saliva, urine, tears, etc. CMV is typically unnoticed in healthy people, but it can life-threatening for the immunocompromised, and also newborn infants. If a pregnant mother, like I was, has no immunities to CMV and is infected, the unborn child also becomes infected. This is the tragedy. For me, it was somewhere around the end of my first trimester, like week 11-13. Daniels brain formation was attacked by the virus. Or, the “Original injury”.
"Every single day, its gratitude. I’m so thankful for the mri. For the medical teams. For the Medtronic rep who helped me. For coffee. For giggles. For a wheelchair repair. For a Sunshine filled morning. For friends. For family. For my own health. For music. For my treasures. For the ability to just let the problems not contain me. To know that I need to stop thinking so much, so that I can hear things. "
With all my love and gratitude, I wish you light and blessings on your own difficult journey.
Remember to have fun. See you next episode!
Watch us on YouTube
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Website
https://www.theadaptedlife.com/
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