
The Adapted Life, Finding Next
I’m Julie Hasselberger. For 26 years, I was the full-time caregiver for my beloved son Daniel, whose life was marked by profound disability and extraordinary beauty. This podcast began as a way to support other parents navigating the complex, often isolating world of special needs caregiving. But life changed — heartbreakingly and irrevocably — when my son passed away.
Now, The Adapted Life, Finding Next is a space for truth-telling, tenderness, and transformation. It’s about what comes after the role that once defined you is gone. It’s about grief, relational trauma, resilience, and the raw, ongoing search for next — for purpose, healing, and connection.
If you’re facing a season of reckoning, rebuilding, or rediscovery, I invite you to walk with me. You are not alone. This is the adapted life… and together, we’ll find what comes next.
The Adapted Life, Finding Next
DON'T TELL ME TO SELF-CARE!
SELF-CARE.
ONE OF THE DREADED PLATITUDES PEOPLE THROW AT CAREGIVERS LIKE MYSELF, IS "YOU KNOW, YOU HAVE TO TAKE CARE OF YOURSELF TO BE A BETTER CAREGIVER FOR ....."
I don't share that opinion, because I see self-care as an extension of self-love for myself. Because I have to take care of my special needs needs son, is not the reason for self care, its a part of it, but it is so much more about me as an individual human being.
In this episode, my dear friends, I chat a bit about the latest things happening in my world with my 24 year old disabled son. I also recap and revisit the past few episodes where I shared my "tools for adapting" in the areas of meditation, gratitude, communication, and then I move into self care.
To be the best version of myself, has meant really taking steps to look inward. To stop the negative thoughts, and begin to nourish my soul with the love that it deserves. As my life continues to expand and be more abundant, as opposed to be stuck in scarcity, everything has shifted. Including the normal "self-care" people think of.
When you tell an exhausted special needs caregiver that if they don't take care of themselves, they won't be a good caregiver, it is a very insensitive thing to say. Life is exhausting. Painful. and at times there is no space for going to the gym and fixing super nutritious meals. Also, most of us caregivers ALREADY KNOW THAT WE SHOULD TAKE BETTER CARE OF OURSELVES. There is just so much more to it.
So I explain to my friends and listeners how I have brought myself to a place of true compassion and self-love. That taking care of me, is not about making a healthy robot to perform tasks, but more about enhancing life as whole. So much expands when abundance becomes our mindset. Self-care. Is about self. The most important part of your self, is your highest self, your soul, that inner energy that is truly the essence of you. I came to a realization, that it was incredibly powerful to be in stillness and listen gently to the silence. Without judgement, with love, and light. And this... has made me a better caregiver for myself first. Everyone else, including my son, receives the bonus prize of my positivity and strength.
I hope you will join us here often, or visit the YouTube channel "Julie Hasselberger" which is video journal of content, created to show the inside of life as a caregiver. Please find me on instagram, Facebook, and even at times, tik Tok
Here are the links.
YouTube Channel
https://www.youtube.com/channel/UCQr7Ot0J0o6_gRnG_fJvzDg
Daniel's Special Art (our shop)
https://www.etsy.com/shop/DanielsSpecialArt?ref=seller-platform-mcnav
Instagram
https://www.instagram.com/jhasselberger/
https://www.etsy.com/shop/DanielsSpecialArt?ref=seller-platform-mcnav
https://www.youtube.com/channel/UCQr7Ot0J0o6_gRnG_fJvzDg